Resources for Brain Injury Parents, Caregivers, and Researchers

Brain Injury Association of Canada

Brain Injury Canada was formed with mission to “improve the quality of life for those living with a brain injury, and their caregivers.”

Brain Injury Resource Center

Brain Injury Resource Center is the place to find links to information on brain injury. While it was designed primarily for traumatic brain injury it contains information relevant to many types of brain injuries.

BrainLine

BrainLine is a national multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine includes a series of webcasts, an electronic newsletter, and an extensive outreach campaign in partnership with national organizations concerned about traumatic brain injury.

Cafe Plus in East Syracuse, NY

For people who have survived a head-injury and is open the first Saturday afternoon of every month from 12 to 4

Craig Sears:A Voice for Traumatic Brain Injury – Youtube Channel

Craig Sears is a Pediatric Acquired Brain Injury (PABI) survivor. This channel is his video vault for some of his advocacy work.

Head Injury Hotline

The Brain Injury Resource Center is a non-profit clearinghouse founded and operated by brain injury activists since 1985.

International Brain Injury Association (IBIA)

The International Brain Injury Association (IBIA) is dedicated to the development and support of multidisciplinary medical and clinical professionals, advocates, policy makers, consumers and others who work to improve outcomes and opportunities for persons with brain injury.

North American Brain Injury Society

NABIS is a society comprised of professional members involved in the care or issues surrounding brain injury. The principal mission of the organization is moving brain injury science into practice. Whether it is in the area of clinical care, research, policy or litigation, the organization stands behind the premise that advances in science and practices based on application of the scientific evidence will ultimately provide the best outcomes for those with brain injuries and the community as a whole.

Women’s Healthcare Topics

Women’s Healthcare Topics, an online resource for information on women’s health issues, including addressing the approximately 1200-1400 children were brought to the hospital last year in the United States for treatment of Shaken Baby Syndrome. Read more.

Dr. Victor Pedro

A non-invasive research-based treatment process which is designed to maximize each child’s brain function and performance, especially in those areas that are under-stimulated, through sensory stimulation and motor signaling.

Arc of the United States

Founded more than 50 years ago by a small group of parents and other concerned individuals, when little was known about the condition of mental retardation or its causes, The Arc today is the world’s largest grassroots organization of and for people with intellectual and developmental disabilities.

ComeUnity

ComeUnity Adoption, Special Needs and Parenting Support – This outstanding parenting site provides hundreds of definitive articles, resource directories, expert interviews and exclusive book reviews on parenting, adoption and children’s special needs. Celebrating our tenth year of parenting, adoption, and special needs support for unique families.

National Conference on Shaken Baby Syndrome

Professor Minns is Academic Head of the University of Edinburgh section Child Life and Health in the Department of Reproductive and Developmental Sciences and the Trust R&D Lead for Children’s Services.

National Institute of Neurological Disorders and Stroke (NINDS)

The National Institute of Neurological Disorders and Stroke (NINDS) is one of 27 Institutes and Centers comprising the National Institutes of Health (NIH). The mission of NINDS is to reduce the burden of neurological disease—a burden borne by every age group, every segment of society, and people all over the world.

Penn State Milton S. Hershey Medical Center
This program is focused on neuroscience research, basic and clinical, of relevance to the Departments of Psychiatry, Neurosurgery, Neural and Behavioral Sciences and Neuroscience.

Science Direct

We present the clinical features, radiological findings and outcome of infants with non-accidental head injury presenting to our department between 2001 and 2003. There were 26 male and 13 female infants, aged between 7 days and 5 months.

American Occupational Therapy Association (AOTA)

The American Occupational Therapy Association (AOTA) is the national professional association established in 1917 to represent the interests and concerns of occupational therapy practitioners and students of occupational therapy and to improve the quality of occupational therapy services.

American Occupational Therapy Foundation

That the American Occupational Therapy Foundation is a charitable, non-profit organization created in 1965 to advance the science of occupational therapy and increase public understanding of its value.

Association of Canadian Occupational Therapy University Programs

ACOTUP/ACPUE is a national organization that promotes and develops occupational therapy education and research with understanding of issues in a global context.

Canadian Association of Occupational Therapists

The Canadian Association of Occupational Therapists provides services, products, events and networking opportunities to assist occupational therapists achieve excellence in their professional practice. In addition CAOT provides national leadership to actively develop and promote the client-centred profession of occupational therapy in Canada and internationally.

Canadian Occupational Therapy Foundation

The purpose of the Canadian Occupational Therapy Foundation has always been to support research and scholarship in the field of occupational therapy. The Foundation’s focus has been on generating, receiving and maintaining funds and developing mechanisms for granting awards to individuals and organizations for research and scholarships.

European Cooperation in Occupational Therapy Research and Occupational Science

ECOTROS stands for European Cooperation in Occupational Therapy Research and Occupational Science. It is an international working group of ENOTHE, the EU-funded European Network of Occupational Therapy in Higher Education. ECOTROS provides information on persons and activities in these fields within Europe.

Occupational Therapy Now

The Canadian Association of Occupational Therapists (CAOT) is the national organization that supports the more than 16,000 occupational therapists (OTs) who work or study in Canada.  OTs improve the health and well-being of Canadians by creating client-centred solutions that help them participate more fully in activities that are important to their everyday lives.

Otseeker

OTseeker is a database that contains abstracts of systematic reviews, randomised controlled trials and other resources relevant to occupational therapy interventions. Most trials have been critically appraised for their validity and interpretability.

Public Occupational Therapy Journal

The goal of this website is to bring together the knowledge of clinical practice and research in occupational therapy.

WORLD FEDERATION OF OCCUPATIONAL THERAPISTS

The key international representative for Occupational Therapists and Occupational Therapy around the world and the official international organization for the promotion of occupational therapy.

Autism Society of America (ASA)

Autism Society of America (ASA) is the leading voice and resource of the entire autism community in education, advocacy, services, research and support.

Huntington’s Disease Society of America

Since its inception, The HDSA Coalition for the Cure has been the flagship of HDSA’s research program. Today, we stand on the brink of answering discrete questions about the nature and progression of HD, questions that could not be addressed prior to the knowledge accumulated by the HDSA Coalition for the Cure.

National Multiple Sclerosis Society

The National MS Society is committed to building a movement by and for people with MS that will move us closer to a world free of this disease.

T.B.I. Life

In the summer of 1979, after his sophomore year of highschool, Dan Windheim suffered a serious head injury as the result of a car accident. After spending 2 1/2 months in a coma, Dan awoke and found his entire life had changed. Over the last 17 years, Dan has been working in many areas and for many causes. He has volunteered his time and efforts to various agencies throughout the county in which he lives because he believes that giving back to others is the best remedy to heal oneself.

AcademyHealth

AcademyHealth is the professional home for health services researchers, policy analysts, and practitioners, and a leading, non-partisan resource for the best in health research and policy.

Ambulatory Pediatric Association

The Ambulatory Pediatric Association fosters the health of children, adolescents, and families by promoting generalism in academic pediatrics and academics in general pediatrics.

American Academy of Pediatrics

The American Academy of Pediatrics (AAP) and its member pediatricians dedicate their efforts and resources to the health, safety and well-being of infants, children, adolescents and young adults. The AAP has approximately 60,000 members in the United States, Canada and Latin America. Members include pediatricians, pediatric medical subspecialists and pediatric surgical specialists.

American Board of Pediatrics (ABP)

Founded in 1933, the American Board of Pediatrics (ABP) is one of the 24 certifying boards of the American Board of Medical Specialties (ABMS). The ABP is an independent, nonprofit organization whose certificate is recognized throughout the world as a credential signifying a high level of physician competence

AMERICAN PEDIATRIC SOCIETY

The objects of the Society shall be to bring together men and women for the advancement of the study of children and their diseases, for the prevention of illness and the promotion of health in childhood, for the promotion of pediatric education and research, and to honor those who, by their contributions to pediatrics, have aided in its advancement.

Canadian Paediatric Society

Caring for Kids provides parents with information about their child’s and teen’s health and well-being. Because the site is developed by the Canadian Paediatric Society — the voice of more than 3,000 Canadian paediatricians—you can be sure the information is reliable.

National Dissemination Center for Children with Disabilities | Center for Parent Information and Resources (CPIR)

NICHCY was funded for decades by the Office of Special Education Programs, at the U.S. Department of Education. The project’s funding ended on September 30, 2014. Much of the rich library of materials and publications that NICHCY produced over the years has a new home here, on this website of the Center for Parent Information and Resources (CPIR).

National Institute of Child Health and Human Development (NICHD)

The mission of the National Institute of Child Health and Human Development (NICHD) is to ensure that every person is born healthy and wanted, that women suffer no harmful effects from the reproductive process, and that all children have the chance to fulfill their potential to live healthy and productive lives, free from disease or disability, and to ensure the health, productivity, independence, and well-being of all people through optimal rehabilitation.

American Physical Therapy Association (APTA)

The American Physical Therapy Association (APTA) is an individual membership professional organization representing more than 95,000 member physical therapists (PTs), physical therapist assistants (PTAs), and students of physical therapy.

Kool Kidz

At Kool Kidz, we believe that above everything else a kid is a kid and we want our intervention techniques to reflect that. We provide physical and occupational therapy for children ages 0 to 21 only in the natural environment and focus our treatment plans on what is important to each child and his or her family. We emphasize community integration for our developmental kidz. We down play the medical aspect of needing therapy and play up the PLAY in getting therapy!

Pediatric Physical Therapy

​​Pediatric Physical Therapy is the first and only peer-reviewed journal devoted to this discipline.  The Journal provides a forum for scientific and professional exchange among researchers and practitioners throughout the world that represent subspecialties of the discipline, including early intervention, neonatology, pediatric sports and fitness, school physical therapy, acute care for seriously ill children, and the prevention of primary and secondary conditions that lead to disabling conditions.

Section on Pediatrics

The Academy of Pediatric Physical Therapy of the American Physical Therapy Association (APTA) promotes the highest quality of life for all children, people with developmental disabilities, and their families. The Academy represents pediatric physical therapy and promotes its members as practitioners of choice for children (birth to 21 years) with or at risk for movement dysfunction.

Child Development Guidelines

The early years of a child’s life are crucial for cognitive, social and emotional development.

Child Welfare League of America

CWLA is an association of nearly 800 public and private nonprofit agencies that assist more than 3.5 million abused and neglected children and their families each year with a range of services.

Childhelp

Founded in 1959 by Sara O’Meara and Yvonne Fedderson, Childhelp is a leading national non-profit organization dedicated to helping victims of child abuse and neglect.

Journal Royal Society of Medicine

Shaken baby (shaken impact) syndrome: non-accidental head injury in infancy.

KidsHealth

KidsHealth is the largest and most-visited site on the Web providing doctor-approved health information about children from before birth through adolescence.

NATIONAL CENTER ON SHAKEN BABY SYNDROME

Founded in 2000, the National Center on Shaken Baby Syndrome (NCSBS) is a non-profit 501(c)3 public charity with a mission to “Prevent shaken baby syndrome and promote the well-being of infants generally through the development and implementation of programs, policy and research; and to support and educate families, caregivers and professionals.” The NCSBS works nationally and internationally with hospitals, public health, pediatricians, social workers, home visitors and other similarly aligned individuals and organizations to provide education and resources to families and professionals that will ultimately keep babies safe.

National Exchange Club Foundation

The National Exchange Club Foundation is committed to making a difference in the lives of children, families and our communities through its national project, the prevention of child abuse.

National Institute of Neurological Disorders and Stroke

The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.

The Center for Disease Control

The CDC is one of the major operating components of the Department of Health and Human Services.

The Shaken Baby Alliance

Since 1998, the Shaken Baby Alliance has provided support to over 250 victim family members per year, trained over 5000 high schoolers in how to deal with a crying baby and SIDS risk reduction, and provided advanced forensic investigation training and child abuse prevention training to over 1,500 professionals each year.

American Association of Colleges of Teacher Education (AACTE)

AACTE is a national voluntary organization of colleges and universities that prepare teachers and other educational personnel.

Association for Persons with Severe Handicaps

TASH is an international membership association leading the way to inclusive communities through research, education, and advocacy. TASH members are people with disabilities, family members, fellow citizens, advocates, and professionals working together to create change and build capacity so that all people, no matter their perceived level of disability, are included in all aspects of society.

Center for the Study of Teaching and Policy (CTP)

CTP is devoted to improving the quality of teachers, teaching, and learning. CTP offers research documents and other publications.

Council for Chief State School Officers (CCSSO)

CCSSO houses two projects focused on improving teacher quality: Center for Improving Teacher Quality (CTQ). One CTQ project is focused on developing models for improving the preparation, licensing, and professional development of both general and special education teachers of students with disabilities & Interstate New Teacher Assessment and Support Consortium (INTASC). A consortium, of state education agencies and national educational organizations, INTASC is dedicated to the reform of the preparation, licensing, and on-going professional development of teachers.

Council for Exceptional Children (CEC)

CEC is a membership organization serving the needs and interests of individuals who work with students with disabilities and their families. CEC promotes its professional standards for teachers of students with disabilities and offers many resources to practitioners.

Higher Education Consortium for Special Education (HECSE)

HECSE is a private, non-profit organization representing colleges and universities that offer doctoral programs that prepare leaders for the fields of special education and early intervention. HECSE offers online reports and action alerts.

Learning Disabilities Association of America

In March of 1963, parents of children with learning disabilities representing local support groups from around the country gathered in Chicago for a national conference. These concerned families organized into a national organization which was incorporated in 1964 as the Association for Children with Learning Disabilities (ACLD).

National Association of State Directors of Special Education (NASDSE)

NASDSE operates for the purpose of providing services to facilitate state agency efforts to maximize educational outcomes for individuals with disabilities.

National Board for Professional Teaching Standards (NBPTS)

The NBPTS mission is to advance the quality of teaching and learning by: maintaining high and rigorous standards for what accomplished teachers should know and be able to do, providing a national voluntary system certifying teachers who meet these standards, and advocating related education reforms to integrate National Board Certification in American education and to capitalize on the expertise of National Board Certified Teachers.

National Center for Culturally Responsive Educational Systems (NCCREST)

NCCREST provides technical assistance and professional development to close the achievement gap between students from culturally and linguistically diverse backgrounds and their peers, and to reduce inappropriate referrals to special education. Project documents target improvements in culturally responsive practices, early intervention, literacy, and positive behavioral supports.

National Center for Education Information (NCEI)

NCEI is a private, non-partisan research organization specializing in survey research and data analysis – particularly in the areas of alternative preparation and certification of teachers and school administrators. NCEI offers online publications and resources.

Center for Parent Information and Resources | National Dissemination Center for Children with Disabilities (NICHCY)

NICHCY was funded for decades by the Office of Special Education Programs, at the U.S. Department of Education. The project’s funding ended on September 30, 2014. Much of the rich library of materials and publications that NICHCY produced over the years has a new home here, on this website of the Center for Parent Information and Resources (CPIR).

New Teacher Center (NTC)

NTC is a national resource dedicated to teacher induction and development, new teacher training, and the support and practices that promote excellence and diversity in the teaching force. NTC offers online publications and professional development opportunities.

Progressus Therapy

Progressus Therapy is the leading nationwide provider of education solutions focusing on school-based therapy and early-intervention services. We attract highly-qualified Speech-language Pathologists (SLPs), Occupational Therapists(OTs) and Physical Therapists(PTs.)

Center For Teaching Quality (CTQ)

CTQ is a national nonprofit that’s been around since 1998. Our vision: a high-quality public education system for all students, driven by the bold ideas and expert practices of teachers. Our mission: To connect, ready, and mobilize teacher leaders to transform our schools.

Study of Personnel Needs in Special Education (SPeNSE)

SPeNSE was designed to address concerns about nationwide shortages of special education personnel and the need for improving their qualifications. Part of a national assessment of the Individuals with Disabilities Education Act mandated by Congress, SPeNSE examined the extent to which personnel are adequately prepared to serve students with disabilities, variations in personnel preparation, and factors that explain those variations. The site includes reports, data tables, instruments, and other information related to the SPeNSE study.

Teacher Education Division of CEC (TED)

TED, a division of the Council for Exceptional Children, supports the professional development of individuals who provide education and supports to individuals with diverse abilities and disabilities and their families.

U.S. Department of Education, Office of Special Education Programs (OSEP)

OSEP is dedicated to improving results for infants, toddlers, children, and youth with disabilities by providing leadership and financial support to assist states and local districts. OSEP administers the Individuals With Disabilities Education Improvement Act (IDEA 2004). IDEA 2004 authorizes formula grants to states and discretionary grants to institutions of higher education and other nonprofit organizations to support research, demonstrations, technical assistance and dissemination, technology and personnel development, and parent-training and information centers. These programs are intended to ensure that the rights of infants, toddlers, children, and youth with disabilities and their parents are protected.

What Works Clearinghouse (WWC)

The What Works Clearinghouse (WWC) collects, screens, and identifies studies of effectiveness of educational interventions (programs, products, practices, and policies).The WWC regularly updates the WWC Technical Standards and their application to take account of new considerations brought forth by experts and users.

American Speech-Language-Hearing Association (ASHA)

The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for 191,500 members and affiliates who are audiologists; speech-language pathologists; speech, language, and hearing scientists; audiology and speech-language pathology support personnel; and students.

Aphasia Hope Foundation

Aphasia Hope Foundation is a public 501(c) 3 non-profit foundation that has a two-fold mission: (1) to promote research into the prevention and cure of aphasia and (2) to ensure all survivors of aphasia and their caregivers are aware of and have access to the best possible treatments available. The Foundation was started with the goal of gathering news, research, therapies, and experiences regarding Aphasia, and sharing this information with the families that desperately needed it.

Baby Sign Language

This site shows you how and the benefits of using sign language with your baby

Childhood Apraxia of Speech Association of North America (CASANA)

The Childhood Apraxia of Speech Association is a 501(c)(3) nonprofit publicly funded charity whose mission is to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop speech and communication.

International Association of Laryngectomees

The International Association of Laryngectomees (IAL) is a non-profit voluntary organization composed of approximately 55 member clubs and recognized regional organizations. These clubs are generally known as “Lost Chord” or ” New Voice” clubs. Clubs are composed of from 10 to more than 300 Laryngectomees. The purpose of the IAL is to assist these local clubs in their efforts towards the total rehabilitation of the Laryngectomee.Laryngectomy is the removal of the larynx and separation of the airway from the mouth, nose and esophagus.

International Dyslexia Association (IDA)

The International Dyslexia Association (IDA) is a non-profit organization dedicated to helping individuals with dyslexia, their families and the communities that support them.

National Aphasia Association (NAA)

The NAA’s mission is to educate the public to know that the word aphasia describes an impairment of the ability to communicate, not an impairment of intellect. The NAA makes people with aphasia, their families, support systems, and health care professionals aware of resources to recover lost skills to the extent possible, to compensate for skills that will not be recovered and to minimize the psychosocial impact of the language impairment.

National Coalition on Auditory Processing Disorders, Inc.

The mission of the National Coalition on Auditory Processing Disorders, Inc. is to assist families and individuals affected by auditory processing disorders through education, support, and public awareness as well as promoting auditory access of information for those affected by auditory processing disorders.

National Spasmodic Dysphonia Association

The mission of the National Spasmodic Dysphonia Association is to advance medical research into the causes of and treatments for spasmodic dysphonia, promote physician and public awareness of the disorder, and provide support to those affected by spasmodic dysphonia.

National Stuttering Association (NSA)

The National Stuttering Association (NSA) is the largest self-help support organization in the United States for people who stutter. Our mission is to bring “hope, dignity, support, education, and empowerment to children and adults who stutter, their families, and the professionals who serve them.”

Selective Mutism Foundation, Inc.

Selective Mutism Foundation, Inc. is the voice of Trust and Experience. An ethical, non-profit, public service organization since 1991. This website is presented to broaden public awareness and understanding of Selective Mutism. Selective Mutism is an anxiety disorder with a persistent FAILURE (not refusal) TO SPEAK in select social settings.

Selective Mutism Group~Childhood Anxiety Network

SMA, part of the Childhood Anxiety Network, is a nonprofit organization dedicated to providing information, resources and support to those impacted by a child with the anxiety disorder known as Selective Mutism (SM).

SignwithMe

Baby or infant sign langauge is the use of American Sign Language (ASL) to communicate with infants and toddlers. Sign language is a perfect transition to verbal speech because hand-eye coordination develops earlier than verbal abilities. By giving your child the ability to communicate earlier you’ll likely experience less frustration and suffer fewer tantrums.

Stuttering Foundation

Stuttering. This often misunderstood disability affects over three million Americans. And despite decades of research, both basic and clinical, the causes are still largely unknown.

Amblyopia Foundation of America

The Amblyopia Foundation of America is the nation’s ONLY nonprofit health organization dedicated solely to establishing a nationwide vision screening program for schoolchildren.

American Academy of Ophthalmology

The American Academy of Ophthalmology is the largest national membership association of Eye M.D.s. Eye M.D.s are ophthalmologists, medical and osteopathic doctors who provide comprehensive eye care, including medical, surgical and optical care.

American Association for Pediatric Ophthalmology and Strabismus

The American Association for Pediatric Ophthalmology and Strabismus is the North American society which promotes training and continuing education in pediatric ophthalmology.

Center for Educational Services for All Blind and Visually Impaired Students in Texas

The Texas School for the Blind and Visually Impaired (TSBVI) serves as a special public school in the continuum of statewide placements for students who have a visual impairment. It is also a statewide resource to parents of these children and professionals who serve them.

Children’s Eye Foundation (CEF)

The former National Children’s Eye Care Foundation (NCECF) is now the Children’s Eye Foundation (CEF) and is the official Foundation of the American Association for Pediatric Ophthalmology and Strabismus (AAPOS)

Foundation Fighting Blindness, Inc. (FFB)

The urgent mission of the Foundation Fighting Blindness, Inc. (FFB) is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa (RP), macular degeneration, Usher syndrome, and the entire spectrum of retinal degenerative diseases.

Foundation for Blind Children

Founded in 1952, the Foundation for Blind Children has become a national model for agencies serving the blind.

Foundation of the American Academy of Ophthalmology

Established in 1980, the Foundation of the American Academy of Ophthalmology raises financial support and implements programs that advance ophthalmic education resulting in the best possible eye care for the public.

Glaucoma Research Foundation

Since 1978, the Glaucoma Research Foundation has funded innovative research and provided educational materials about glaucoma. Our donors have contributed over $45 million dollars to this cause. While we do not conduct research ourselves, we work closely with the research community to make progress towards a cure for glaucoma.

Helen Keller Foundation

Based on the legacy of Helen Keller, the Foundation strives to prevent blindness and deafness by advancing research and education. The Foundation aspires to be a leader in integrating sight, speech and hearing research with the greater biomedical research community, creating and coordinating a peer-reviewed, worldwide network of investigators and institutions.

International Albinism Center

The International Albinism Center is a team of research professionals at the University of Minnesota. It is a multi-disciplinary group of researchers that include interests in clinical genetics, molecular biology, ophthalmology, dermatology, and biochemistry, all with a central theme of understanding the cause and effect of albinism and other forms of pigment loss in humans.

Knights Templar Eye Foundation, Inc.

To provide assistance to those who face loss of sight due to the need for surgical treatment without regard to race, color, creed, age, sex, or national origin provided that they are unable to pay or receive adequate assistance from current government agencies or similar sources and to provide funds for research in curing diseases of the eye.

Lighthouse International

Founded in 1905 and headquartered in New York, Lighthouse International is a not-for-profit organization. Through its pioneering work in vision rehabilitation services, education, research and advocacy, Lighthouse International enables people of all ages who are blind or partially sighted to lead independent and productive lives.

Low Vision Gateway

Created to be a starting point to access information on the World Wide Web related to the fields of low vision and blindness.

LVRGNet, the Low-Vision Network

LVRGNet is the world-wide-web interface for the Low Vision Research Group (LVRG), providing an Internet resource for researchers, clinicians, and others with an interest in low vision. Here you can learn about recent and ongoing research in low vision, and find links to FAQs, support groups, discussion groups, and other resources for the low-vision community.

Matt Leinart Foundation

The beneficiaries of the Matt Leinart foundation include children facing severe economic, physical and emotional hardships limiting achievement of their dreams.

National Association for Parents of Children with Visual Impairments

NAPVI provides leadership, support, and training to assist parents in helping children reach their potential.

National Association for the Visually Handicapped

The NAVH works with the visually impaired so that those affected can live with as little disruption as possible. An online visual aids store.

National Eye Institute

The National Eye Institute was established by Congress in 1968 to protect and prolong the vision of the American people.

National Organization for Albinism and Hypopigmentation

NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them. It is operated on a volunteer basis and is funded primarily by dues and contributions of its members.

Prevent Blindness America

A volunteer eye-health & -safety organization dedicated to fighting blindness and saving sight. Public forum to discuss vision concerns.

Retina Specialists

Provides patients with information about retinal conditions and surgeries including diabetic retinopathy, retinal detachment, macular degeneration, macular hole, macular pucker, macular cyst, uveitis, ocular tumors and retinal vascular diseases.

Retinitis Pigmentosa

Retinitis Pigmentosa International supports research to end blindness from degenerative eye disease, promote a public awareness and education campaign, and provide human services programs to better the quality of life for those with vision loss.

Section on Ophthalmology (SOOp)

The Section on Ophthalmology (SOOp), founded in 1987, is dedicated to improving the care of infants, children and adolescents by providing an educational forum for the discussion of problems and treatments related to ophthalmologic conditions in children.

Vision of Children

The Vision of Children Foundation’s mission is to cure hereditary childhood blindness and vision disorders, and to improve the quality of life of visually impaired individuals and their families. It advances towards this goal by directing and sponsoring scientific research leading to the prevention and treatment of these conditions, and by serving as an information source for the medical community, the public, and families affected by genetic vision disorders.

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